South Sound Parent to Parent is a Resource Helping Families With Concerns About Maintaining Confidentiality in Autism and Other Protected Records

South Sound Parent to Parent (SSP2P) addresses rising concerns from parents about the confidentiality of autism diagnoses following remarks by HHS Secretary Robert F. Kennedy Jr. Executive Director Kim Smith notes that negative statements about autism complicate the support SSP2P offers to families. The organization emphasizes that proper management of diagnosis records is crucial for accessing essential services, as many therapies require a formal diagnosis. SSP2P reassures families that local healthcare providers typically safeguard the privacy of medical and educational records, referencing regulations like HIPAA and FERPA.

In light of potential misinformation stemming from federal discussions on an autism registry, SSP2P remains committed to providing accurate information and resources. Parents are encouraged to communicate with their healthcare providers to understand how their information is protected. Smith firmly states that people with autism are not burdens and deserve dignity. SSP2P continues to stand with families raising children with disabilities, fostering a supportive community.