Sickle cell patients not listened to - report

A report indicates that many individuals with sickle cell disease avoid seeking ambulance care due to past negative experiences involving inadequate pain relief and perceived disrespect from medical staff. The London Ambulance Service (LAS) has recognized these issues and developed an action plan to enhance care, which includes comprehensive training for clinicians on sickle cell disorder. Patients reported feeling reluctant to call for ambulances unless they were in extreme pain, fearing they would not receive appropriate medication or be treated as drug-seekers. Dr. Fenella Wrigley, LAS Chief Medical Officer, acknowledged the need for better support and advocacy for sickle cell patients, who often face crises requiring urgent care.

The report also highlighted issues such as slow response times and insufficient prioritization of patients with sickle cell disease. John James, Chief Executive of the Sickle Cell Society, criticized the current level of care as "indefensible" and emphasized the importance of implementing the report's recommendations. Approximately 17,500 people in the UK live with sickle cell disease, particularly affecting those of African or Caribbean descent. Enhanced training for LAS staff and the inclusion of sickle cell patients in training initiatives are among the report's key recommendations.